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Elizabeth Cox

PROKids team awarded NIH funding to develop guidance on use of pediatric PROMIS metrics in ambulatory populations

Elizabeth CoxThe PROKids team, led by Elizabeth Cox, MD, PhD, received new NIH funding to develop standard guidance for the use of pediatric PROMIS metrics in ambulatory clinical populations.  In collaboration with leadership from prominent child health advocacy organizations and delivery systems nationally, as well as other PROMIS experts and the Institute for Clinical and Translational Research Dissemination and Implementation Program, PROKids will interview healthcare stakeholders to understand, and ultimately address in the guidance, the challenges and opportunities of assessing pediatric population health with patient-reported metrics.     

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Rachel Grob

Upcoming WCHQ learning event focused on the integration of behavioral health into primary care

Rachel GrobHIP collaborates annually with the Wisconsin Collaborative for Healthcare Quality (WCHQ) to sponsor a learning event on topics of current importance to health in Wisconsin. This year's event will showcase several national and state models that are successfully expanding access and integrating behavioral health services into primary care settings. HIP Investigator Rachel Grob will be speaking about HealthExperiencesUSA and the DIPEx methodology to elevate the patient voice in healthcare. The assembly will be held on October 16 at the Monona Terrace in Madison. Learn more and view the agenda for the assembly here.

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Pascale Carayon and Maureen Smith awarded $2.5 million grant to create patient safety learning lab

Pascale CarayonMaureen SmithDr. Pascale Carayon, the Procter & Gamble Bascom Professor in Total Quality in the Department of Industrial and Systems Engineering, and Dr. Maureen Smith, professor in the Departments of Population Health Sciences and Family Medicine & Community Health, were recently awarded $2.5 million from the Agency for Healthcare Research and Quality (AHRQ) to create a patient safety learning lab.

In the 4-year grant, entitled “Engineering Safe Care Journeys for Vulnerable Populations,” Drs. Carayon and Smith will collaborate with a transdisciplinary team of engineers, health services researchers, nurses, physicians, and pharmacists. They will develop, design, implement, and evaluate a patient safety passport that will support the safe journey of older adults diagnosed with a fall or suspected urinary tract infection in the emergency department.

Older adults over 65 are more likely to present to the emergency department and experience patient safety issues after the emergency department visit as compared to younger people. The innovative concept of patient safety passport will be used by patients, caregivers, and clinicians in the emergency department, hospital, and skilled nursing facility, and will facilitate communication and coordination as the patient transitions from the emergency department and travels to the hospital, skilled nursing facility, or home.

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Shared Decision Making Repository now available on HIPxChange

WiSOR LogoThe Wisconsin Surgical Outcomes Research Program (WiSOR) recently released a new tool on HIPxChange, the Shared Decision Making Repository, to enable researchers and clinicians to easily locate and sort through a large collection of current literature on shared decision making instruments and avoid performing redundant literature searches. The tool compiles and catalogs over 70 qualitative and quantitative instruments that measure shared decision making, and can be easily sorted, filtered, or searched based on keywords, measure type, and who the instrument measures. You can view the tool for free here

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Andrew Quanbeck

Andrew Quanbeck awarded 2 NIH grants to study substance misuse in primary care

Andrew QuanbeckDr. Andrew Quanbeck was recently awarded two 5-year NIH grants totaling nearly $5 million to implement interventions for preventing and treating substance misuse in primary care.

He will be collaborating with HIP on the project, “Promoting the implementation of clinical guidelines for opioid prescribing in primary care using systems consultation.” The project addresses the change needed in the U.S. regarding the opioid crisis and prescribing practices by determining how to implement safer prescribing practices as efficiently and effectively as possible in primary care clinics. 

He will also be studying how the smartphone app "A-CHESS," which monitors the activity of people with alcohol use disorders and delivers interventions as needed, can facilitate healthier drinking patterns among primary care patients. 

Read more about Dr. Quanbeck's new studies here.


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Maureen Smith

Health disparities project featured in Wisconsin Partnership Program video

Maureen SmithDr. Maureen Smith, HIP Director, was recently featured in a video from the Wisconsin Partnership Program about her disparities project with the Wisconsin Collaborative for Healthcare Quality and the Collaborative Center for Health Equity. This project aims to develop and implement a publicly reported measure of disparity in the quality of care in Wisconsin and examine the sources of disparities in the quality of care. This video was introduced by HIP Outreach Specialist Lauren Bednarz, and shown at the Healthiest State Summit on September 20-21 in Green Bay, WI. You can watch the video below or at the link here.

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Patient Advisor Toolkit 1: Orientation for Patient Advisory Committees (PAT-1) now available on HIPxChange


Patient engagement in research has become increasingly prioritized in recent years, as patients can provide unique and valuable feedback to researchers on the design, implementation, and dissemination of studies from the perspective of people the research seeks to help. However, researchers often lack the tools to effectively engage patient advisors in the research process.

To address this need, stakeholder engagement experts from the Wisconsin Network for Research Support (WINRS) at the University of Wisconsin – Madison have created a new toolkit to help prepare patient advisors to provide useful advice and work effectively with research teams. The toolkit, called Patient Advisor Toolkit 1: Orientation for Patient Advisory Committees (PAT-1), contains a comprehensive set of modifiable resources that provide step-by-step guidance on conducting orientations with patient advisors.

“Patient advisors” are patients, family members, caregivers, and other members of the public who advise researchers at one or more stages of a research project. They typically do not have professional roles in either research or health care domains. Orienting patient advisors at the beginning of a project to the project goal, the respective roles of all stakeholders, and other important information helps prepare patient stakeholders for their work and lays the groundwork for a successful patient-researcher partnership throughout all phases of the research process.

PAT-1 consists of several modules that can be tailored for each research project. There are eight essential modules that contain the information and tools needed to conduct a 2-hour orientation, as well as four optional modules that can be included based on the specific needs of the project. Each module provides an overview of learning objectives and background information, and a complete set of training materials, including an outline of the activities and steps, advance preparation needed, and a sample facilitation script. The toolkit also contains three appendices that have additional resources for planning, tailoring, conducting, and following up after orientation.

The toolkit was designed specifically for researchers who conduct clinical trials and want the benefits of engaging patients as advisors on research projects. Other researchers and organizations who want to develop institutional patient and family advisory councils or community advisory boards may also find the toolkit valuable.

Researchers and organizations can contact WINRS for help tailoring the PAT-1 materials or to request a “train-the trainer” program for their staff. (

WINRS previously co-developed the Toolkit on Patient Partner Engagement in Research (TOPPER), which contains patient orientation materials that were developed and adapted for a Patient Centered Outcomes Research Institute  project (principal investigator: Elizabeth Cox, MD, PhD). PAT-1 replaces TOPPER as WINRS’ current toolkit on orientation for patient advisors. A second toolkit, PAT-2, will be a complementary resource to help researchers plan and facilitate ongoing meetings with patient advisors. It is expected to launch in 2019.

More Information


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Elizabeth Cox

Elizabeth Cox discusses benefits of Fall Competition Award on collaborations and extramural funding

Elizabeth CoxDr. Elizabeth Cox recently discussed the benefits that the UW Fall Research Competition has had on her research career in a UW-Madison news article. As a multi-time recipient of the award, Dr. Cox has found that the funding can be a great way to start new collaborations or support mentoring a graduate student. She has also used the funding to conduct a pilot test of an intervention to address barriers to self-management for youth and teens with type 1 diabetes, and then went on to secure a 3-year extramural award to evaluate the impact of the intervention in a multi-site randomized, controlled trial.

The deadline to apply for the next cycle of the Fall Research Competition is September 21, 2018. For more information and to apply, see here.

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