To prevent the long-term complications of diabetes among children, our program tailored diabetes self-management resources offered to children and their families at two pediatric diabetes centers, meeting the individual needs of over 2,200 Wisconsin children with type 1 diabetes (T1D) and their families. In addition, elements of this program were incorporated into diabetes clinics at Children’s Hospital of Wisconsin in Milwaukee. The study’s methods for engaging youth and families has inspired others like the American Diabetes Association and the Wisconsin Department of Public Health to make use of similar strategies.
Patient experience is an aspect of health and health care that has received increasing attention in the U.S. For patients and caregivers facing a new diagnosis, or needing to make a health-related decision, other people’s experiences of the same diagnosis, treatments, and impact on the life course have always been valued. With the advent of web-based health information, the influence of patient experience has grown even more rapidly.
Recognizing this gap, researchers at four universities—including UW-Madison—and the Veterans Administration formed a collaboration called the Health Experiences Research Network (HERN) in order to bring an internationally-vetted method of rigorously collecting diverse health experiences to the U.S.
In 2016, they launched www.HealthExperiencesUSA.org with an inaugural module on diverse young adults’ experiences with depression, a disease that can have significant consequences for future social, occupational, and health outcomes.
Approximately 1 in 15 young adults in the United States have high blood pressure, but young adults have the lowest rates of blood pressure control (achieving a blood pressure <140/90 mmHg) compared to other adult age groups, and many young adults have reported having few resources to address their needs for heart health education.
To address these problems, the MyHEART program was developed with young adults and healthcare team members to address a broad range of topics. MyHEART has multiple components, including young adult education and research programs across multiple healthcare systems.
Family-centered care has many benefits, including improved clinical outcomes, increased patient and family engagement and satisfaction, and more effective use of health care resources.
In the hospital setting, one way to achieve these benefits is through family-centered rounds (FCR) at the bedside. In fact, the American Academy of Pediatrics recommends FCRs as part of its policy statement on the pediatrician’s role in patient- and family-centered care.
Despite their benefits, FCRs can be challenging to operationalize at the institutional level. That’s why PROKids has developed a checklist to help implement FCRs effectively and sustainably.