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Content validity of the PROMIS® family relationships measure for children with chronic illness

Content validity of the PROMIS® family relationships measure for children with chronic illness

Elizabeth D. Cox, MD, PhD and colleagues recently published new findings about the content validity of the Patient-Reported Outcomes Measurement Information System® (PROMIS®) Family Relationships measure in the journal, Health and Quality of Life Outcomes.  This NIH-funded study used qualitative methods to assess whether this new patient-reported outcome measure reflects the experiences of children with chronic conditions.  The authors found that the Family Relationships measure, which had been developed and validated in a general pediatric population, does capture the experience of family relationships for chronically ill children.  For the study, over 30 children with asthma, sickle cell disease, or type 1 diabetes and their parents were interviewed about their family experiences and the impact of chronic illness on those relationships. Interviewees described their family relationships in a manner consistent with the facets of the PROMIS® metric.  Findings suggest potential utility for this metric in research and clinical practice with chronically ill children and their families. 

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