Patient and Stakeholder Engagement Short Course

The UW-Madison Institute for Clinical & Translational Research invites you to a two day short-course devoted to the methods of stakeholder engagement in translational research.

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Patient Engagement Short Course

Featured Healthcare Partner

The Wisconsin Health Information Organization (WHIO) is a non-profit organization dedicated to improving the quality, affordability, safety, and efficiency of health care in Wisconsin by providing quality, reliable, integrated data to all stakeholders seeking to transform healthcare. 

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Featured Research Partner

Primary Care Academics Transforming Healthcare (PATH) is a writing collaborative that brings together leaders from several UW organizations and departments to communicate the work that has been done at UW Health to redesign primary care and to create an infrastructure that can support scholarly activities.

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Health Innovation News

Stay up-to-date on health services and health innovation news by following HIP's curated magazine on Flipboard. You can follow online or by subscribing to Health Innovation News on your mobile Flipboard app.

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Health Innovation News on Flipboard

Free-the-Data Program

The goal of the “Free-the-Data” Program is to make analysis-ready healthcare data available to UW faculty, staff, trainees, and UW Health staff for research and quality improvement purposes.

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HIPxChange

Sharing to transform health and healthcare

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HIP supports the development and dissemination of tools for evidence-based health system change through its website, HIPxChange.

Featured Toolkit: Partnering with Parents of Hospitalized Children Using an Inpatient Portal

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An inpatient portal is a patient-facing web-based application intended to engage hospitalized patients and their caregivers by providing secure access to their personal health information.

The Partnering with Parents of Hospitalized Children Using an Inpatient Portal toolkit was developed to help guide the introduction, implementation, and/or evaluation of an inpatient portal in healthcare organizations. It contains materials to engage institutional stakeholders, implementation timeline and planning information, key decisions and considerations, data collection tools to monitor the impact of the portal, and more.

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News

Team funded to implement children's asthma and sickle cell quality measures

Elizabeth CoxA team of investigators that includes Dr. Elizabeth Cox recently received funding from AHRQ and the Centers for Medicare and Medicaid Services to develop and implement new children's quality measures for asthma and sickle cell disease. The project is funded under the Pediatric Quality Measures Program, and will be used by state Medicaid and Children's Health Insurance Programs, as well as payors, clinicians, and patients & families to measure improve the quality of care for children with these diseases.

New patient and stakeholder engagement resources available on HIPxChange

Team around table

Several new patient and stakeholder engagement resources created by partners of the UW-ICTR Community Academics Partnerships program are now available on HIPxChange. The new resources include an interactive online training on deeply engaging patients with a mix and match of methods, a roadmap and materials for engaging hard-to-reach patient stakeholders, and workshop videos & materials on sustaining engagement of blended stakeholder boards across the research trajectory.

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Publications

Patient-Centered Outcomes Research: Brave New World Meets Old Institutional Policies

Doctor Patient HandshakeIn a recent study by Jessica Chung, et al., the challenges and opportunities of managing institutional policies related to patient engagement, privacy, and research participant protection are discussed in the context of engaging patient stakeholders in research. The article discusses examples of quandaries that arose when the values and/or preferences of patient stakeholders conflicted with institutional policies regarding background checks, letters about privacy violations, and study reminders.

Increasing Consumer Engagement by Tailoring a Public Reporting Website on the Quality of Diabetes Care

Man at computerIn a recent studyDr. Maureen Smith et al. adapted a consumer-focused public reporting website to display diabetes quality reports tailored to the user's chronic conditions. Cognitive interviews with 20 individuals about the website suggested increased engagement from tailoring the site in three areas: the user's ability to interact, relevance, and feeling empowered to act.

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