Patient and Stakeholder Engagement Short Course

The UW-Madison Institute for Clinical & Translational Research invites you to a two day short-course devoted to the methods of stakeholder engagement in translational research.

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Patient Engagement Short Course

Featured Healthcare Partner

The Wisconsin Health Information Organization (WHIO) is a non-profit organization dedicated to improving the quality, affordability, safety, and efficiency of health care in Wisconsin by providing quality, reliable, integrated data to all stakeholders seeking to transform healthcare. 

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Featured Research Partner

Primary Care Academics Transforming Healthcare (PATH) is a writing collaborative that brings together leaders from several UW organizations and departments to communicate the work that has been done at UW Health to redesign primary care and to create an infrastructure that can support scholarly activities.

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Health Innovation News

Stay up-to-date on health services and health innovation news by following HIP's curated magazine on Flipboard. You can follow online or by subscribing to Health Innovation News on your mobile Flipboard app.

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Health Innovation News on Flipboard

Free-the-Data Program

The goal of the “Free-the-Data” Program is to make analysis-ready healthcare data available to UW faculty, staff, trainees, and UW Health staff for research and quality improvement purposes.

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HIPxChange

Sharing to transform health and healthcare

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HIP supports the development and dissemination of tools for evidence-based health system change through its website, HIPxChange.

Featured Toolkit: Partnering with Parents of Hospitalized Children Using an Inpatient Portal

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An inpatient portal is a patient-facing web-based application intended to engage hospitalized patients and their caregivers by providing secure access to their personal health information.

The Partnering with Parents of Hospitalized Children Using an Inpatient Portal toolkit was developed to help guide the introduction, implementation, and/or evaluation of an inpatient portal in healthcare organizations.

It contains materials to engage institutional stakeholders, implementation timeline and planning information, key decisions and considerations, data collection tools to monitor the impact of the portal, and more.

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News

MyHEART website launched to help young adults with high blood pressure

Heather JohnsonApproximately 1 in 15 young adults have high blood pressure, and they have lowest rates of blood pressure control compared to other adult age groups, putting them at risk for a future heart attack, stroke, congestive heart failure, and/or kidney disease. To help address this issue, Dr. Heather Johnson and her team recently launched a new website, MyHEART, that aims to help young adults with high blood pressure live a healthier life, lower their blood pressure, and prevent heart disease. A toolkit with information for providers and administrators about how they can use and promote the website with patients is also available. Learn more about the MyHEART program here.

Dr. Jennifer Weiss named an AGA Future Leader

Jennifer WeissDr. Jennifer Weiss has been named one of 18 Future Leaders by the American Gastroenterological Association. The Future Leaders program was created in 2015 to identify early career gastroneterologists who have the potential to make a significant impact on the specialty. During the year-long program, participants will receive leadership training and work closely with mentors from the AGA on projects that are linked to the AGA's strategic plan.

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Publications

Diabetic Foot Ulcer Severity Predicts Mortality among Veterans with Type 2 Diabetes

Foot wound

Dr. Meghan Brennan et al. recently conducted a study of a national cohort of veterans with type 2 diabetes who developed incident diabetic foot ulcers, and found that compared to early-stage ulcers, gangrene was increased with an increased risk of mortality. The authors also found that initial diabetic foot ulcer severity was a more significant predictor of subsequent death than diagnosed vascular disease, such as stroke, coronary artery disease, or peripheral arterial disease.

Patient-Centered Outcomes Research: Brave New World Meets Old Institutional Policies

Doctor Patient HandshakeA recent article by PROKids team member Jessica Chung, et al., discusses the tensions between the engagement of patient stakeholders in research and the institutional and legal framework governing that engagement. Patient engagement during all stages of research has become increasingly common. Yet institutional policies, often intended to protect patients and research participants, are evolving to meet this new reality. Chung, et al. lays out these tensions using examples from trial funded by the Patient-Centered Outcomes Institute and led by Dr. Elizabeth Cox, Director of PROKids. Quandaries arose when the values or preferences of patient stakeholders conflicted with institutional policies about background checks, letters about privacy breaches, and study reminders. 

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