Patient and Stakeholder Engagement Short Course

The UW-Madison Institute for Clinical & Translational Research invites you to a two day short-course devoted to the methods of stakeholder engagement in translational research.

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Patient Engagement Short Course

Featured Healthcare Partner

The Wisconsin Health Information Organization (WHIO) is a non-profit organization dedicated to improving the quality, affordability, safety, and efficiency of health care in Wisconsin by providing quality, reliable, integrated data to all stakeholders seeking to transform healthcare. 

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Featured Research Partner

Primary Care Academics Transforming Healthcare (PATH) is a writing collaborative that brings together leaders from several UW organizations and departments to communicate the work that has been done at UW Health to redesign primary care and to create an infrastructure that can support scholarly activities.

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Health Innovation News

Stay up-to-date on health services and health innovation news by following HIP's curated magazine on Flipboard. You can follow online or by subscribing to Health Innovation News on your mobile Flipboard app.

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Health Innovation News on Flipboard

Free-the-Data Program

The goal of the “Free-the-Data” Program is to make analysis-ready healthcare data available to UW faculty, staff, trainees, and UW Health staff for research and quality improvement purposes.

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HIPxChange

Sharing to transform health and healthcare

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HIP supports the development and dissemination of tools for evidence-based health system change through its website, HIPxChange.

Featured Toolkit: Preventing Opioid Prescription Theft and Ensuring Secure Transfer of PHI (PROTECT PHI)

Prescription

The PReventing Opioid prescription Theft and Ensuring seCure Transfer of Personal Health Information (PROTECT PHI) intervention helps to improve patient safety and post-discharge outcomes by helping to ensure secure delivery of opioid prescriptions and protect personal health information (PHI) when patients transition from the hospital to a nursing home setting.

This toolkit provides detailed information on the PROTECT PHI goals, components, and protocol steps. It also provides an overview of common challenges to the PROTECT PHI intervention, and possible solutions for these barriers.

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News

Team funded to implement children's asthma and sickle cell quality measures

Elizabeth CoxA team of investigators that includes Dr. Elizabeth Cox recently received funding from AHRQ and the Centers for Medicare and Medicaid Services to develop and implement new children's quality measures for asthma and sickle cell disease. The project is funded under the Pediatric Quality Measures Program, and will be used by state Medicaid and Children's Health Insurance Programs, as well as payors, clinicians, and patients & families to measure improve the quality of care for children with these diseases.

New patient and stakeholder engagement resources available on HIPxChange

Team around table

Several new patient and stakeholder engagement resources created by partners of the UW-ICTR Community Academics Partnerships program are now available on HIPxChange. The new resources include an interactive online training on deeply engaging patients with a mix and match of methods, a roadmap and materials for engaging hard-to-reach patient stakeholders, and workshop videos & materials on sustaining engagement of blended stakeholder boards across the research trajectory.

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Publications

Family engagement in pediatric sickle cell disease visits

Parent, Child, DoctorIn a recent article, Dr. Elizabeth Cox et al. sought to explore the origins of communication challenges that adults with sickle cell disease report having in clinic visits. They compared communication between physicians and families in pediatric sickle cell disease, diabetes, and asthma by analyzing videos and parent surveys, and found that children were less engaged in sickle cell disease visits, with providers gathering information from parents more frequently. These findings highlight the opportunity to improve sickle cell disease care by enhancing patient engagement.

The unchartered frontier: Preventive cardiology between the ages of 15 and 35

Heart Care

Risk factors for cardiovascular disease (CVD), such as atherosclerosis and lifestyle behaviors such as poor diet, begin in childhood and can progress through the adult years. A recent review co-authored by Dr. Heather Johnson emphasizes that in order to reduce the burden of CVD, it is important to not only treat risk factors in adolescents and young adults, but also to prevent those risk factors from developing in the first place. Methods to assess CVD risk and deliver cardiovascular preventive care to young adults are also discussed.

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