The Development of the Rheumatology Informatics System for Effectiveness Learning Collaborative for Improving Patient-Reported Outcome Collection and Patient-Centered Communication in Adult Rheumatology

Patient-reported outcomes (PROs) are an integral part of treat-to-target approaches in managing rheumatoid arthritis (RA). In clinical practice, however, routine collection, documentation, and discussion of PROs with patients are highly variable. This paper from HIP Investigator Dr. Christie Bartels describes the RISE LC (Rheumatology Informatics System for Effectiveness Learning Collaborative), which was established to develop and share best practices in PRO collection and use across adult rheumatology practices in the United States.

The goals of the RISE LC were developed through site surveys and in-person meetings. Participants completed a baseline survey on PRO collection and use in their practices. RISE LC learning sessions focused on improving communication around PROs with patients and enhancing shared decision-making in treatment plans. The RISE LC is a continuous, structured method for implementing strategies to improve PRO collection and use in rheumatological care.