Patient and doctor discussion

Patients' roles in governance of learning: Results from a qualitative study of 16 learning healthcare systems

Patients' roles in governance of learning: Results from a qualitative study of 16 learning healthcare systems

Patient and family engagement has been identified as key to fulfilling Learning Healthcare Systems (LHSs) promise as a model for improving clinical care, catalyzing research, and controlling costs. Little is known, however, about the state of patient engagement in the learning mission of these systems or about what governance structures and processes facilitate such engagement.

In this publication, authors including HIP Investigator, Dr. Rachel Grob conducted a qualitative analysis of how patients and family members are engaged in the governance of systematic learning at 16 purposively sampled LHSs based on telephone interviews with 20 patient/family leaders and 79 employee leaders.

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