Recent Publications

Publication Highlights

A family-centered rounds checklist, family engagement, and patient safety

Family-Centered RoundsIn a recent randomized clinical trial led by Dr. Elizabeth Cox, implementing a checklist during family-centered rounds increased family engagement and the safety of hospitalized children from the perspective of the families. The checklist was developed with input from the hospital staff and families of hospitalized children, and two items were found to significantly increase family engagement: when hospital staff read back orders, families engaged in more decision-making and provided more information, and families were also more engaged when the team talked about goals for discharge. A press release about the study is available here, and the materials needed to implement the family-centered rounds checklist in are available here.

Predictors of primary care provider adoption of CT colonography for colorectal cancer screening

CT ScanIn a recent study by Dr. Jennifer Weiss et al. to examine factors influencing primary care provider adoption of CT colonography (CTC) for colorectal cancer screening, the authors linked survey responses with electronic health record data and found that substantial variation in the use of CTC for screening existed among primary care providers and clinics. Primary care providers were more likely to recommend CTC for screening if they specialized in Internal Medicine, perceived that it was effective in reducing mortality from colorectal cancer, or thought that CTC had a higher number of perceived advantages.

Diabetic Foot Ulcer Severity Predicts Mortality among Veterans with Type 2 Diabetes

Foot woundDr. Meghan Brennan et al. recently conducted a study of a national cohort of veterans with type 2 diabetes who developed incident diabetic foot ulcers, and found that compared to early-stage ulcers, gangrene was increased with an increased risk of mortality over the next 1, 2, and 5 years. The authors also found that initial diabetic foot ulcer severity was a more significant predictor of subsequent death than diagnosed vascular disease, such as stroke, coronary artery disease, or peripheral arterial disease.

Patient-Centered Outcomes Research: Brave New World Meets Old Institutional Policies

Doctor Patient Handshakerecent article by PROKids team member Jessica Chung, et al., discusses the tensions between the engagement of patient stakeholders in research and the institutional and legal framework governing that engagement. Patient engagement during all stages of research has become increasingly common. Yet institutional policies, often intended to protect patients and research participants, are evolving to meet this new reality. Chung, et al. lays out these tensions using examples from trial funded by the Patient-Centered Outcomes Institute and led by Dr. Elizabeth Cox, Director of PROKids. Quandaries arose when the values or preferences of patient stakeholders conflicted with institutional policies about background checks, letters about privacy breaches, and study reminders. 

Increasing Consumer Engagement by Tailoring a Public Reporting Website on the Quality of Diabetes Care

Man at computerIn a recent studyDr. Maureen Smith et al. adapted a consumer-focused public reporting website to display diabetes quality reports tailored to the user's chronic conditions. Cognitive interviews with 20 individuals about the website suggested increased engagement from tailoring the site in three areas: the user's ability to interact, relevance, and feeling empowered to act.

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